Fun Stuff

Isaiah came over with his parents for a little while this evening. Casey really seemed to like him. She has always really taken to boys. It's kind of funny. She likes to play with little girls too, but she really shows off when little boys are around. She was looking around and talking to him. Tim was holding her and she was even bending her legs a little. After they left I asked her if she wants him to come back soon and she gave me a big YES. I was really glad we finally got to have them over for a bit. Hopefully we will get to see them again soon.

Busy Girl

Yesterday Casey had a play date. Her friend Anjali came over with her mom, Rhitu, for a little while. I of course did not think to grab the camera. Casey seemed to have a good time. Anjali was so sweet, she would show Casey the toys. When we suctioned Casey she wanted to help her. It was very cute and very sweet. It is so funny how much kids change in such short time periods. We saw Anjali a while back (maybe a year) and she was quiet and shy and then yesterday she was so chatty and just funny. Hopefully they can come over to play again soon.

Casey has water therapy today. Then tomorrow she has Isaiah coming by to play.

We have been training a new nurse this week (Michelle). She is really sweet. The sad thing is that once she is trained she is leaving us. She is just with us for a few weeks and then she goes back to her normal job as a school nurse. We should have some more candidates come out this week and next. I really hope we find a good full time person soon. I look forward to getting back to a normal schedule.

That's pretty much it for right now. As always we hope everyone is doing well.

Graduation

What a big day!!! Casey's nurse, Martiza, came over around 10. It was so sweet. She brought Casey a "Congratulations" balloon and a dozen yellow roses. Casey LOVES balloons & yellow. Very very sweet of her. After she got here we got Casey ready to go. We all headed to the celebration just before 11. There were about 8-10 kids that graduated today with Casey. It was so cute. The had diplomas, little cap & gowns and everything. We have a few other pics and even some video that we need to upload but here is a quick one of the 3 of us. The celebration was really cute. They had a cake and drinks, and took lots of pics of all the kidos. I think Casey had a good time. It was Maritza's last day as her full time nurse (she is still with us, just not full time now). I was glad we were able to do something special with her today. The timing worked out great.

After we got home Casey was so tired. She slept for a little while then some friends of ours came over. They brought their cameras and we had an afternoon photo shoot. It is too hard on Casey to try and take her to a photo studio so this was the next best thing. They got lots of really good pictures. Hopefully we will get them all processed and uploaded in the next week or so (as well as the rest of her grad photos). Keep an eye on her Flickr page for updates.

Hair Do

So a long time ago I tried to cut Casey's hair myself. It did not go well. I swore that I would never do it again. It was just to hard to hold her up with one hand and cut with the other. I used to cut my sisters hair all the time. I gave them some really cute cuts. But I am just not able to do Casey's hair (and no, having Tim hold her is not an option). I called a local Cool Cuts 4 Kids and talked with one of the stylists there. After I explained that Casey needs a haircut, but that she is not really mobile she agreed to come to us. She came by and Casey did really good. She took off a few inches. I think Casey will be much cooler now. She gets so hot and sweaty with all that hair on her neck and back. Now we just need to style it and she will be all good to go.

No Play Date :(

Casey and her friend had to reschedule yesterday evening play date. Isaiah had a running nose and started sneezing so we decided to play it safe and reschedule for another time.

It is actually kind of an interesting story - very small world. Last October we took Casey to a Halloween party for the ECI group at Easter Seals. While we were there we met a few kids. One that we remembered was dressed as Caesar. He was so cute and just learning to walk. We talked with his mom a little before we had to leave the party. Then a few weeks ago I got an email through the contact us link from a guy I used to go to school with. He told me about his son and sent me the link to his page. I replied back and told him that his story reminded me of the little boy from Halloween. Anyway, long story short, that little boy was his son. He was not at the party, just his wife. It really is a small world. Maybe next week we can try again.

Casey does not have much more going on this week. We are still waiting to meet some nurses to possibly/hopefully work out as Casey's new primary day nurse. The end of this month is going to be here very quickly so we need to get that done.

Fun Stuff

Casey's boyfriend and his family from California came over to visit last Friday. It was so nice to see them while they were in town visiting. He was not feeling well so Casey and him just took it easy while he was here. We had hoped to catch up with them later in the weekend before they had to get back too. We had a bunch of other stuff going on so we ended up having to skip the other stuff. It was so great to see them. I brought down the camera to take pics, but forgot to turn it on and take any. I am so bad about that.

Casey had water therapy on Wednesday. That was her only appointment this past week. It was nice not to have to go to a bunch this week.

We did get some bad news. Maritza (Casey's primary nurse) has decided to take a full time job with her church. I am sure I would have made the same choice in her shoes. It is still very sad that we are not going to be able to have her full time any longer. She still wants to come by for a few hours each week. I am sure Casey will be excited when she comes by; we are all going to miss her a lot. We should start meeting possible candidates this week. Maritza will be with us through the month. A month used to seem like forever but it goes by in the blink of an eye now a days. I hope we can find someone that Casey really takes to. It may take a few tries (like last time) but I am sure someone is out there for us.

I got an email from a friend of mine yesterday saying she was going to be in Austin this weekend. She and I have been trying to get together since I got back to Texas. It finally worked out this time. She came over this morning with her 2 girls (Emily -7 and Ally -3). We spent the morning here with Casey. After word she and I took her girls to the pool and Chuck E Cheese. We had a fun day. Casey got to hang out with her daddy (even better than Chuck E Cheese). The pic above was before we headed out.

Casey has had lots of friends come by in the past few weeks. She loves to see her friends. She has another friend coming over Tuesday evening for a little while. Tuesday's friend is a new friend. I will post more about that play date later this week. As always we hope everyone is well. Have a happy and safe 4th of July!