As many of you already know, Casey LOVES music. A while back she was very into hip hop. Which was really funny as no one around her was listening to hip hop, and we had no idea where she got it. A friend of ours turned us onto an album that we played many times of the years. It is hip hop beats to nursery rhymes. Casey thought it was so funny- Baby Jamz Vol. 2. If anyone is looking for a change to the regular nursery rhymes, I highly suggest it.
Lately Casey has been listening to Pandora a lot. She has a bunch of different stations that play a variety of songs. This weekend we added the "Alvin and the Chipmunks" station. I have been very amused. So amused, I had to share. There is lots of chipmunks, and some party, upbeat type music (Katy Perry, Black Eyed Peas, etc). Then of course the expected Sponge Bob, Veggie Tales songs. There is one set of songs that I had never heard of before, but I love them. If you have not heard of Gummibar, check him out. It is like club music meets Sesame Street. He has a bunch of songs, and they are all hysterical. Apparently he is a YouTube sensation. I had never heard of him. Casey and I are a huge fans now.
Monday, June 27, 2011
Sunday, June 26, 2011
Highlight
Casey was picked as this month's Highlight story on Hand to Hold. If you are on Facebook you can "like" the story.
Also, the next Lunch and Learn has been set. If you are interested in attending please be sure to RSVP.
Casey has a new pillow system that we are getting fitted Thursday. It should make positioning in her wheelchair a lot easier. We will be sure and post some pictures later this week, as well as an updated Review of the item.
Also, be sure and check out Downloads. We have added a few new files recently.
I will post pictures and more after Thursday. Until then, we hope everyone is doing well.
Also, the next Lunch and Learn has been set. If you are interested in attending please be sure to RSVP.
Casey has a new pillow system that we are getting fitted Thursday. It should make positioning in her wheelchair a lot easier. We will be sure and post some pictures later this week, as well as an updated Review of the item.
Also, be sure and check out Downloads. We have added a few new files recently.
I will post pictures and more after Thursday. Until then, we hope everyone is doing well.
Saturday, June 11, 2011
Hot Hot Hot
This summer got started and has not let up yet. We have already had multiple 100+ days. Since Casey (and I) and not big fans of being hot, we are staying inside as much as possible. I think we are going to have to have me or her nurse go start the car after therapy while the other one stays with Casey. The car is so hot after just 1 hour in the parking lot.
Casey has been enjoying her relaxed summer schedule. School is coming to her over the summer. She will be back in the classroom in August. Her OT and Speech at the hospital have decided to work together. That has been a nice change too. Instead of going up there 3 days a week for therapy we only go 2 days now.
We have a few doctor appointments coming up. All routine, nothing to worry about. In July we see Casey's neuro. Her arms are getting stiffer every day. I think we are going to try Botox in her triceps this time. We never saw any improvement in her legs. When we injected her thumbs though it helped a lot. I really hope that injecting her triceps can get her bending a little easier. We will see in July.
We have finally found a night nurse that wants Friday & Saturday nights. She started last weekend. I love having all of our nights covered. It was killing me to be up all night Friday & Saturdays, then still have to function the following days. Tim was great about letting me get some sleep. But, I didn't want to sleep all day. We both had things to get done during the day. Having the night shifts covered is WONDERFUL. The new nurse seems to be picking up on Casey's little noises and needs pretty quick.
Last week was fun. A friend of mine and I presented the Lunch & Learn about stuff to do in the Austin area this summer. Hand to Hold was the sponsor of the session. There were only a few people, but I think it went well. Next month we will discuss the different types of specialists, and some medical terms that you hear a lot when in the hospital (especially NICU). I hope each month we got more people. Last week was a good kick off, I think, to what I hope will become a great program.
That's pretty much it. I haven't taken/posted many pics lately. I will try to get some in the next week or so to post. Until then, we hope you are all doing well. Have a great summer, and don't forget the sunscreen :)
Casey has been enjoying her relaxed summer schedule. School is coming to her over the summer. She will be back in the classroom in August. Her OT and Speech at the hospital have decided to work together. That has been a nice change too. Instead of going up there 3 days a week for therapy we only go 2 days now.
We have a few doctor appointments coming up. All routine, nothing to worry about. In July we see Casey's neuro. Her arms are getting stiffer every day. I think we are going to try Botox in her triceps this time. We never saw any improvement in her legs. When we injected her thumbs though it helped a lot. I really hope that injecting her triceps can get her bending a little easier. We will see in July.
We have finally found a night nurse that wants Friday & Saturday nights. She started last weekend. I love having all of our nights covered. It was killing me to be up all night Friday & Saturdays, then still have to function the following days. Tim was great about letting me get some sleep. But, I didn't want to sleep all day. We both had things to get done during the day. Having the night shifts covered is WONDERFUL. The new nurse seems to be picking up on Casey's little noises and needs pretty quick.
Last week was fun. A friend of mine and I presented the Lunch & Learn about stuff to do in the Austin area this summer. Hand to Hold was the sponsor of the session. There were only a few people, but I think it went well. Next month we will discuss the different types of specialists, and some medical terms that you hear a lot when in the hospital (especially NICU). I hope each month we got more people. Last week was a good kick off, I think, to what I hope will become a great program.
That's pretty much it. I haven't taken/posted many pics lately. I will try to get some in the next week or so to post. Until then, we hope you are all doing well. Have a great summer, and don't forget the sunscreen :)
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