Thursday, September 29, 2011

Welcome to CLU

I am so excited to announce a new campaign. You can link to the new site from Casey's menu - CLU. We will still be posting all of Casey's stuff here.

CLU is set up to provide people with ideas and projects to encourage inclusion in our communities. Our kickoff event is the Trick-or-Treat Project. There are so many kids that are excluded from Halloween traditions. When you participate in the Trick-or-Treat project you are including many kids that are often left out (like Casey). Check out the site, like us on Facebook, and spread the word.

Wednesday, September 07, 2011

Over the River...

Nope, no river, no woods, just a few blocks for Casey to get to her Great Grandma & Great Grandpa's new place. My mom and John came in this weekend and helped us get my grandparents moved in to a great new place right around the corner. It is so great to have them close by (no more driving to Temple to see them). It made for a busy holiday weekend.

Casey had a busy day yesterday. She started off with school. She did great, she answered all of the questions and participated for the full time. Then she had an ENT doctor appointment. She hates to get her ears cleaned :( It is not fun for any of us. No matter how bad the 5-10 minutes of cleaning are, they don't compare to what she would go through to have the cholesteotoma reconstructed. I will take a few minutes every 3 months instead of surgery any day. Yesterday evening we finished the day with Casey's first trip to see my grandparents new place. She was so tired when we got home.

We are about to head to see the pulmonologist. Hopefully this will be a quick and easy appointment. Then we have about a month with out any more doctor appointments. As always, we hope everyone is doing well.